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Brain Surprise
On Oct. 7, 2012, I had a seizure – at a pumpkin patch – with my family and a friend and about 300 strangers. One minute I was watching our kids eat snow cones and the next minute I was waking up in an...
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This Ain’t No Spa Treatment
The standard post-surgery treatment plan for a GBM 4 does NOT include a sugar scrub, a pedicure, OR a massage. Instead, it involves an intensive 6 weeks of chemotherapy and radiation. I think the only...
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All for Science…and Hope
After the 6 week “chemorad” adventure (chemo+radiation), the standard course of treatment is 5 days of chemo (at double the dose from the 6 weeks) every month. Giving me about 23 days or so between....
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Misty Watercolor Memories
Ah, the frontal lobe…memory, emotion, speech. Let’s take a look at memory for a minute. Everyone forgets things every day. Ever walk into a room and forget why you went in there? Gone to the grocery...
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It’s Not a Tumah. Oh Wait…Yes It Is.
I’ve mentioned that I had no obvious symptoms before that first seizure. But, there it was, a 3.5-4cm tumor in my left frontal lobe – pushing from one side of my brain into the other side. I have an...
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Toxic Chemicals
The weird thing about a grade 4 Glioblastoma Multiforme is that even when there’s no immediate evidence of a tumor in your brain, you still have to continue fighting it as though it’s there, hiding and...
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The Same, But Different – United We Stand With Our Tumors
When I was first diagnosed with brain cancer, lots of people suggested support groups. I cringed at the idea (based on my own avoidance of ‘joining’, rather than personal negative experience). But as I...
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One Year Ago…
…in a pumpkin patch far, far away…I was feeling cranky and blue. Distant, perhaps in a fog of mood. It was warm, much like today will be. Everything changed that day. I had a seizure and got to ride in...
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The Alternative Anniversary
My mother-in-law thinks that we should be celebrating my one year anniversary today since it’s been one year since my tumor was removed (instead of discovered). Who am I to argue with that?! Any excuse...
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Open Ended Death Sentence
A few people have asked me about my reaction to Brittany Maynard’s death. How do you feel about it? Does it upset you? Do you think it was ‘right’? Would you do the same thing? Do you think she gave up...
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Burying the lede
I know updates to EveryDayLeft are less than frequent and even less scheduled. This is my fault (husband reporter), and chiefly for two reasons: 1. Life — it won’t stop happening for even a minute; and...
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